Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. They also con...

The goal is ninety. Just ninety clean and sober days to loosen the hold of the addiction that caused Bill Clegg to lose everything. With six weeks of his most recent rehab behind him he returns to New York and attends two or three meetings each day. It is in these refuges that he befriends essential allies including Polly, who struggles daily with her own cycle of recovery and relapse, and the seemingly unshakably sober Asa.At first, the support is not enough: Clegg relapses with on...

A practical, insightful guide to the moral and ethical standards of healthcareSucceeding in the healthcare field means more than just making a diagnosis and writing a prescription. Healthcare professionals are responsible for convincing patients and their family members of the best course of action and treatments to follow, while knowing how to make the right moral and ethical choices, and so much more. Unlike daunting and expensive texts, Medical Ethics For Dummies offers...

We live in a world increasingly governed by technology—but to what end?Technology rules us as much as laws do. It shapes the legal, social, and ethical environments in which we act. Every time we cross a street, drive a car, or go to the doctor, we submit to the silent power of technology. Yet, much of the time, the influence of technology on our lives goes unchallenged by citizens and our elected representatives. In The Ethics of Invention, renowned schol...

Lori Emerson examines how interfaces—from today’s multitouch devices to yesterday’s desktops, from typewriters to Emily Dickinson’s self-bound fascicle volumes—mediate between writer and text as well as between writer and reader. Following the threads of experimental writing from the present into the past, she shows how writers have long tested and transgressed technological boundaries.Reading the means of production as well as the creative works they produce, Emerson demonstrates ...

Over the past forty years, the health humanities, previously called the medical humanities, has emerged as one of the most exciting fields for interdisciplinary scholarship, advancing humanistic inquiry into bioethics, human rights, health care, and the uses of technology. It has also helped inspire medical practitioners to engage in deeper reflection about the human elements of their practice.In Health Humanities Reader, editors Therese Jones, Delese Wear, and Lester D. F...

For more than a century, the American medical profession insisted that doctors be rigorously trained in medical science and dedicated to professional ethics. Patients revered their doctors as representatives of a sacred vocation. Do we still trust doctors with the same conviction? In Trusting Doctors, Jonathan Imber attributes the development of patients' faith in doctors to the inspiration and influence of Protestant and Catholic clergymen during the nineteenth and early twentiet...

How should we attempt to resolve concrete bioethical problems? How are we to understand the role of bioethics in the health care system, government, and academe? This collection of original essays raises these and other questions about the nature of bioethics as a discipline. The contributors to the volume discuss various approaches to bioethical thinking and the political and institutional contexts of bioethics, addressing underlying concerns about the purposes of its practice. Included a...

Drawing upon real accounts of negligence, incompetence, and distrust, this book seeks to identify the key competencies of a good doctor, the ways in which medical care fails, and the roadblocks to ensuring that every licensed doctor is capable. Arguing that it is possible to improve patient care—by lifting the veils of secrecy and better informing patients, by establishing more effective ways of checking doctors' competence, and by ensuring that medical watchdogs protect the public—this di...

This book takes as its point of departure a humble cell lying on the intersection of ideas as diverse and yet interlaced as life, knowledge, commerce, governance, and ethics. It seeks to deepen the understanding of stem cell entities and the concerns, hopes, and aspirations that shape and make them viable therapeutic entities in the context of rapid globalization. Several key intersections between individual, group, and institutional relationships have become central to locating and debati...

In Suffering Narratives of Older Adults, Mary Beth Quaranta Morrissey turns to the traditions of phenomenology, humanistic psychology and social work to provide an in-depth exploration of the deep structure of the suffering experience. She draws upon the notion of maternal holding to develop an original construct of maternal affordances – the ground of possibility for human development, agency and relational practices. The conceptual analysis is based on the life narrativ...

The factions debating health care reform in the United States have gravitated toward one of two positions: that just health care is an individual responsibility or that it must be regarded as a national concern. Both arguments overlook a third possibility: that justice in health care is multilayered and requires the participation of multiple and diverse communities.Communities of Health Care Justice makes a powerful ethical argument for treating communities as critical mor...