* A New York Times Editors' Choice * Publishers Weekly Best Nonfiction Books of 2021 *I am not talking about surviving. I am not talking about becoming human, but about how I came to realize that I had always already been human. I am writing about all that I wanted to have, and how I got it. I am writing about what it cost, and how I was able to afford it.Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shi...

'Superb... up-ends received wisdom about disability... Humbling, dark, bright, defiant, generous... revolutionary' David Mitchell, author of Cloud Atlas A profoundly beautiful memoir about disability, difference, and living as a vulnerable body Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body...

Un récit bouleversant, intime et universel, délicat et puissant. Il nous emporte dans un voyage intérieur qui vient chambouler nos certitudes.En affirmant que sa vie ressemble à la nôtre, Jan Grue nous invite à partager le monde tel qu'il le vit et le voit, depuis un fauteuil roulant...Sa vie ressemble à la nôtre - sauf qu'il est atteint d'une maladie neuromusculaire rare. Cela pourrait ne rien changer, et pourtant cela change tout. Parce que le monde tel qu...

När Jan Grue blir pappa får han ta över en bunt papper från sina föräldrar: journaler, läkaranteckningar och inlagor. Brev från myndigheter, som med jämna mellanrum undrar: Hur är pojkens tillstånd nu? Utifrån dessa papper, och sina erfarenheter av att leva med en sårbar kropp i ett modernt välfärdssamhälle, skriver Jan Grue om drömmar, arbete, framgång och tillgänglighet.

Disability studies has engaged with discourse analysis in key works both from the UK and the USA. While the perspectives and analyses of discourse analysis have proved well suited for exploring disability, however, its methods have not been sufficiently developed in a disability studies context. Conversely, discourse analysts have traditionally been concerned with social issues and fields in which asymmetric power relations, marginalization, and discrimination play a central role, e.g. gen...

'Superb... up-ends received wisdom about disability… Humbling, dark, bright, defiant, generous… revolutionary' David Mitchell, author of Cloud AtlasA profoundly beautiful memoir about disability, difference, and living as a vulnerable bodyJan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clin...

Growing up disabled can be an isolating experience. As much as you might be surrounded by loving and well-meaning friends and family, chances are no one close to you is going through this alongside you . . . until now!From navigating sports at school, to facing the confusion of getting given free stuff all the time, to juggling hospital trips alongside your social life, this anthology of firsthand experiences of childhood disability will be a welcome companion for disabled children...

Growing up disabled can be an isolating experience. As much as you might be surrounded by loving and well-meaning friends and family, chances are no one close to you is going through this alongside you . . . until now!From navigating sports at school, to facing the confusion of getting given free stuff all the time, to juggling hospital trips alongside your social life, this anthology of firsthand experiences of childhood disability will be a welcome companion for disabled children...

Jan Grue è appena diventato padre quando ritira dalla casa dei suoi genitori un intero scaffale di cartelle cliniche. Contengono la sua infanzia narrata dall'esterno, dai medici che gli hanno diagnosticato all'età di tre anni una patologia neuromuscolare e che da allora lo descrivono come un corpo difettoso con un futuro cupo e limitato. Un quadro molto diverso dalla percezione che Grue ha sempre avuto di se stesso e dalla vita che ha vissuto studiando ad Amsterdam e a San Pietroburgo, per...